Category Archives: EhLeRs DaNLoS SyNdRoMe EDS

My JoUrNeY.

  I like knowing what works for others, so I thought it would be a good time to share what works for me.   I have had 10 years of different medications for debilitating migraines and body pain. I also have TBI, Ehlers Danlos, Fibro, had Osteoporosis, PTSD, Arthritis, Diverticulitis, and a few other lovely […]

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PFAM ~ Blog Carnival ~ How to get the right people to pay attention.

Patiently Impatient ~  How to Get the Right People to Pay Attention!   How do you get your healthcare practitioners to take you seriously and give you the time and attention you need?   It has been quite a while since I last shared or hosted a PFAM blog carnival.  I am hoping to get […]

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ReSuLtS fRoM tHe LaB…

  I had pretty much stopped looking, I mean how many roads lead to more answers?  I guess I have some amazing friends who pay attention to what I have shared both online as well as in person.  If it was up to the standard doctor to figure out why I never really healed right […]

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Celiac – Ehlers Danlos – Service / Assistance Dog – CreativeLIVE

Well, I’ve been wondering about what to write about.  I’ve several things on my mind.  First of all I’d like to say that it is National Ehlers Danlos Awareness Month (EDS).   I have EDS.  On it’s own with out my accident I would probably be able to hold down a job combined with the accident […]

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TBI.. TrAuMaTiC BrAiN iNjUrY…

So at my visual appointment.  My very specialized visual appointment.  With Dr. N I learned allot.  I wish I could remember it all.  But he gave us two huge stacks of paper so we could learn more.  I evidently have a TBI.  It effects my balance, makes me dizzy, concentration is highly difficult,etc!  With my […]

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